The Struggle Continues

How does that saying go? In like a Lion out like a lamb? We are hoping and praying that is how winter will work for us. Hunter has been crying for two days now, you can completely tell it is GI related, of course. I am sure the antibiotics that he was on has caused his bowels to stop. We went to the Dr. this morning, and sure enough. We are now on IV antibiotics and bowel rest for 2 days. My heart just breaks watching him struggle so hard, whimpering and crying. I have had enough of this, we have to get to the bottom of what is going on. I know it is partially because of who Hunter is and the fact that he has Hirsch Sprungs, but there has to be something we can do. I feel like his tummy hurts more than it doesn't these days. February will be a year that we have been dealing with this and it appears we have not made any progress. We have been doing the rectal irrigation's twice a week to try and keep things moving, but as you can see we are still dealing with issues. So, we will give this 48 hours and see what the plan from here is. We are very lucky to have such wonderful nurses for Hunter. We were able to do the IV's here and run the fluids at home so we don't have to be in the hospital. Now we have to see how he does over the next 48 hours, and then recheck is platelets, white blood and red blood cell counts. Hunter's platelets are over double what they should be, red blood cell counts are low, and white are high, so something is going on. Please continue to keep my little man in your prayers.

So, just trying to get back to uneventful. Hope this finds everyone well. God Bless