Ahh.... Home...

Yep, we made it. Hunter came home last night and a happy little guy he was to be there. Now, we are hoping to continue on with a journey of uneventfulness.

Thank you again for all your thoughts and prayers. Boo is doing good, and you could tell he was a happy little man to be home.

We will update soon. God Bless

Yep, Still Here

Yep, we are still in Milwaukee.

Hunter was still having some pain issues, but it looks like we now have the cocktail of choice figured out. I irrigated him this morning to see what we could get, and I was able to get some stool. But, since his tummy was a little distended this morning the feeds have stopped. Sounds like they will probably do a KUB (Tummy Xray) this evening just to make sure there are no visible issues. So, please pray for poop.

They did a chest xray this morning, and there is one questionable spot.. so they are going to keep an eye on that. They also took cultures since his temp has been elevated. Nothing has came back yet, and I am thinking it is all due to agitation.

So, another xray in the morning to check on things and we keep praying for poop. Otherwise we are just passing time.

Please keep boo in your thoughts and prayers. God Bless

Happy Friday.... Not

Well our little visit is turning in to a little longer than we originally expected. They just did rounds and are saying early to mid next week before boo goes home. Arghh.... I am trying to not be bummed out but I am. It is just so depressing here. It is depressing to start thinking about the fact we have been here more than home this year. Arghh.. But, I guess this too will pass. We should have everything out of the way and be able to enjoy a nice summer going forward.

Please keep boo in your thoughts and prayers. God Bless

Button Boy

Do you like the new knick name? Well, you have to learn to make light of the situation sometimes. He's the cutest button boy I have ever seen : )

Well, we had a good day on this end of the world. Boo is doing good. Hunter is still having pain, but it is manageable. Hopefully tomorrow we will be able to start some slow feeds. Otherwise, we are just sticking together and trying to pass some time.

Hope all is well. Please continue to keep Hunter Bunter Boo in your thoughts and prayers.

God Bless

Settled In

Well, Hunter is back in his room and settled in. His surgery ended up taking 3 hours due to all the scar tissue that he had due to his pull through at birth. So, what was suppose to be a one night stay is looking like 5 to 7 days. I am trying to stay positive, but it just sucks. Granted everyone here is wonderful, but I know I have had enough of this place and I am sure Hunter has also. But, in the big picture he is doing pretty well. So, we will count our blessings and be thankful for all we have.

On another sad note, Hunter's little girlfriend Autumn recently passed away. Please keep her family in your thoughts and prayers during this difficult time. Sweet cheeks, we think of you often...and are blessed to have known you.

So, tonight we continue to say our prayers and thank God for all the blessings that we have. Please keep Boo in your thoughts and Prayers.

God Bless

Waiting

Well, Hunter went back to Surgery at about 2:00, so now we wait and anyone that knows me that is not one of my finer qualities : )

So, hopefully within the next hour Hunter will be out and heading over to the 4th floor here at Childrens in Milwaukee.

Please keep Hunter in your thoughts and Prayers

God Bless

On The Road Again

Well, that is the story of our life right now. After being in Milwaukee Friday and Monday, we will be heading down again on Wednesday. Hunter is scheduled to get his surgical JTube on Wednesday at 1:15, along with a new set of ear tubes. Dr. is saying minimum of one night in the hospital, because the surgery may not be as cut and dry because of scare tissue he has from the pull through he had shortly after birth for his hirsch sprungs. Arghhh.... can't anything just be easy.

I am a little nervous about things, but in the big picture I am not sure why. So, hopefully after this is all said and done, we can go back to "Normal." Just want our uneventfulness back, is that really too much to ask??

So, in the big picture nothing to complain about, that is for sure. Hunter is doing fabulous... if I do say so myself. I think Dr. Sood was simply amazed at how awesome he looks. What can we say, he is a rock star!!

As for the other little guys. Hayden is going on a field trip today... and Daddy is going along, so that should be fun. And Mr. Harrison... love this stage where we think we are independent but we really are not.... Big news for him is he is starting to want to sit on the potty. He doesn't go, but at least we are heading in the right direction.

So, our three ring circus is doing well. Please keep Mr. Hunter Bunter Boo in your prayers tomorrow. Please pray for a safe, successful and uneventful surgery. Please pray for a quick recovery so we can head home and get back to "Normal."

God Bless

A Plan... I think

Well, I think we finally have a plan. After being in Milwaukee again to get a new J\G tube, I think we have a plan. Hunter is scheduled for a surgical J to be placed on Wednesday. We are hoping it is just a quick one night stay in the hospital and back home we come. No more weekly or biweekly trips to get our J\G replaced, thank goodness. I have for sure had enough of that, and I am sure Hunter has also.

So, waiting to hear from Dr. Gordon's nurse, and hoping we don't have to go to Milwaukee Monday for a Preop appointment. That would be really stupid, personally. I said I would come down late Tuesday or early Wednesday for him to see Hunter. I love Milwaukee and all, but not that much.

Hope all is well. Thank you for checking in on Hunter. God Bless

Things That Make you go Hmmm...

Well, we are still battling the J tube madness. We go to see GI next Monday and the Surgeon is going to consult with us regarding doing a permanent J tube. So, we'll see how that goes.

Hunter's temp is a little low, starting last night. He slept most of the day yesterday, but didn't sleep the night before, so not sure if that is just him catching up or what. So, we'll see how his temp is running this morning, and then probably touch base with the Dr. to see what he things. I am a little sensitive to the whole sleeping and low temp issue since those were both symptoms before he went septic. So, we'll see how he is later this morning.

Please continue to pray for sweet Hunter. Have a great day. God Bless

J Tube Madness

Yep, that is what I have to say. Hunter's J Tube is going to drive us over the end. We have a two week cycle going. So, on the phone to GI again today. This madness has to stop.

So, enough complaining. Tomorrow we head to Milwaukee to see ENT, and the Pulmonologist just for Trach clinic, so it should be an uneventful trip.

As for our weekend, it was very nice. We had a low key weekend, in the big picture, and it was just what we needed. It was very nice to be home all weekend as a family.

So, overall pretty uneventful at the Woldt house and we will take it. I promise one of these years to post some new pictures.

Hope everyone had a great Easter. God Bless