Do you sometimes feel like you just have to keep telling yourself I think I can I think I can, but yet you feel like you keep sliding back down that hill?
That is how this week has really gone for us. The Dr's have came to the conclusion that there is no obstruction in Hunter's upper or lower Intestines. Even though his bowel is so dilated and he shows symptoms of an obstruction, a lot of what is going on could just be from the Hirsch Sprugs he had at birth.
We have met with GI and the Surgeon to discuss options. We all know that Hunter's bowel's are not working the best and that motility is a big issue for him, so we aren't convinced we will gain much from doing a motility study on him.
So, the plan.... We tried to start Hunter back on some Pedialite, but he ended up throwing that all up. So, Hunter got a PICC line put in last night and TPN (intravenous feedings) started this evening. We will get him stable on this and be sent home for the holidays so we can get strong. The plan is to come back the week after Christmas sometime for an ileostomy. This is very similar to a colostomy, but it will be at the end of his small intestine, and they will remove his large intestine since it is not working yesterday.
It's hard to sit back and think about what this all means. Even though you know this is the right thing to do you sit and second guess yourself. So, that is what the week has had in store for us.
Continue to keep Hunter in your thoughts and prayers. God Bless
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1 comment:
Hang in there Leah!! You are continoulsy in our thoughts and prayer during this very difficult time....
Precious Hunter, stay strong Buddy and Keep fighting..You and your mom are such an inspiration to us all!!
Hugs,
Brenda
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