One of the moments I have been waiting for... Hunter opened his eyes last night. I was so happy to see those big blues I started to cry. I know, imagine that. Hunter stayed a wake for a little, but you could tell he has wondering what was going on. I am so so proud of him.
The plan today is to take him off his drips for sedation and pain and change to meds every 4 or 6 hours as needed. They will continue to come down on the vent settings as he becomes more and more alert. We continue to pray for clear blood cultures and urine cultures. We continue to pray that his organs recover from the trauma they have encountered.
Thanks again for all your prayers and support. God Bless
Wednesday, January 13, 2010
Tuesday, January 12, 2010
Step by Step
I keep reminding myself that we need to keep taking baby steps. As our path continues, those steps will get bigger. It gets to be long and emotionally draining days waiting. Waiting for Hunter to wake up. Waiting for Hunter's infection to go away, since he is again testing positive for a fungal infection. Waiting to be able to hold Hunter in my arms.
I keep reminding myself that good things come to those who wait, but waiting is hard. Overall Hunter is making progress in the right direction and that is what matter. What is that mean? Well, wait and see, the motto of my life for the last almost 8 years. You would think I would have this mastered by now.
The Dr's decreased Hunter's sedation meds, and decreased the settings on the vent. We have started to see a periodic eye open or lip move. So, we continue to wait.
Continue to keep Hunter in your thoughts and prayers. Pray that the fungal infection goes away for good. Pray that his heart and kidney's recover from the trauma he has experienced, and that his liver is not damaged by the increased amount of fungal medicine needed.
Thanks again. God Bless
I keep reminding myself that good things come to those who wait, but waiting is hard. Overall Hunter is making progress in the right direction and that is what matter. What is that mean? Well, wait and see, the motto of my life for the last almost 8 years. You would think I would have this mastered by now.
The Dr's decreased Hunter's sedation meds, and decreased the settings on the vent. We have started to see a periodic eye open or lip move. So, we continue to wait.
Continue to keep Hunter in your thoughts and prayers. Pray that the fungal infection goes away for good. Pray that his heart and kidney's recover from the trauma he has experienced, and that his liver is not damaged by the increased amount of fungal medicine needed.
Thanks again. God Bless
Monday, January 11, 2010
Roller Coaster
Wonder how I am feeling these days? Well, you know that feeling in your chest when you are at the top of the roller coaster looking down? Your heart in your throat? That is how I feel these days. Even though Hunter is doing great, all things considered, I still feel like I am sitting on the edge of my seat. I guess having seen first hand how fast things can turn has made me feel like this. I know God is watching over Hunter and guiding him, now we just need to patiently wait. Those of you who know me know what a good waiter I am. I know good things come to those who wait, I just have to keep reminding myself of that.
I don't know what the next days or weeks look like for us. But, do I really need to know? What I know right now is that my little man is here with me. He has proven that he is a fighter and he has too much unfinished business here. Now I need to remind myself the importance of waiting patiently. I need to remind myself that I need to wait patiently to see what the next few days and weeks will look like for us. Will it be different? ... Probably. Will it be bad? Not a chance.
Thank so much for all the love and support. Continue to pray for my sweet boy Hunter and the true Miracle that he is.
God Bless
I don't know what the next days or weeks look like for us. But, do I really need to know? What I know right now is that my little man is here with me. He has proven that he is a fighter and he has too much unfinished business here. Now I need to remind myself the importance of waiting patiently. I need to remind myself that I need to wait patiently to see what the next few days and weeks will look like for us. Will it be different? ... Probably. Will it be bad? Not a chance.
Thank so much for all the love and support. Continue to pray for my sweet boy Hunter and the true Miracle that he is.
God Bless
Sunday, January 10, 2010
Still Swimming
We are still swimming in some heavy waters. Things are moving slow, but in the right direction. Hunter's blood cultures came back normal which is a huge huge step. He is still vented, on dialysis, and heavily medicated which includes being paralyzed. He is truly our miracle. I am so proud of him. He has shown us that he is not ready to leave his family here on earth yet.
The road in front of us is still pretty long. We are just taking baby steps, but I think we hopefully reaching the tip of the woods. There are a lot of unknowns yet at this time including the damage to his heart and kidneys.
We just continue to pray each and every minute for the blessing we have been given. Thank you to all our families and friends for their love and support during this difficult time. It means a lot.
God Bless
The road in front of us is still pretty long. We are just taking baby steps, but I think we hopefully reaching the tip of the woods. There are a lot of unknowns yet at this time including the damage to his heart and kidneys.
We just continue to pray each and every minute for the blessing we have been given. Thank you to all our families and friends for their love and support during this difficult time. It means a lot.
God Bless
Friday, January 8, 2010
Rough Road
Well, Day one here was very interesting, Many students and doctors hard to keep them all straight. As the road for Hunter gets more complicated, he still reminds us his fight to live is strong and that he is boss. throughout our stay Hunter has had his ups and downs but the more information we get such as finding out it is a systemic infection with fungal and bacterial components, the closer we are to getting better. As the days go by we gain more time to treat, currently Hunter is on dialysis to help him get rid of the fluid he is retaining and receiving many antibiotics. We are all praying that he does well and gets better. Please keep us in your thoughts and prayers.
God bless,
Love the Woldts
God bless,
Love the Woldts
Tuesday, January 5, 2010
Another Trip
Well, we have taken another trip. Hunter was admitted to Children's in Milwaukee today. He is retaining fluids and having some respiratory issues because of it. The GI doctor believes he has more than just GI issues going on right now. What that more is... we don't know. He is consulting with some other docs, including cardiology. The GI Dr is concerned that his temp and heart rate are very low. As we find out more I will keep you posted. At this time, Surgery is on hold for Friday until we find out what is going on. Please keep Hunter in your thoughts and Prayers.
God Bless
God Bless
Saturday, January 2, 2010
Holiday's
Well, we have made it through the holidays. Sad to say, but I am glad they are over.
Hunter is doing pretty good. He has been having some issues with his blood sugars dropping low. We have been monitoring them and were finally able to talk with GI in Milwaukee. The answer was if we thought they were bad enough we should come down and be admitted so that they could work on tweeking his TPN. We made the decision to just keep monitoring things and talk with his GI doctor in Milwaukee on Monday when he gets back in the office. So, we will see what he has to say. I am really hoping we don't have to head to Milwaukee any sooner than Thursday. He has been sleeping more than normal, but is starting to have a few more awake times. Maybe he is just trying to prepare himself for his surgery.
So, the plan is still to go to Milwaukee Thursday morning, and Surgery will take place at 9:30 on Friday. I am starting to feel a little better about the surgery and am starting to feel comfortable with the decision we made. Hunter has been having stooling issues still on the TPN, and then he starts to throwing up. I think he is just trying to remind me why we are doing the surgery.
So, we are just trying to hang tight and coast our way to Thursday.
Hayden and Harrison are doing well. They enjoyed Christmas. I think the hits were the tinker toys and the Geotrax trains.
Otherwise, same old same old at the Woldt house. I hope everyone had a great and safe holiday.
Thanks again for checking in. God Bless
Hunter is doing pretty good. He has been having some issues with his blood sugars dropping low. We have been monitoring them and were finally able to talk with GI in Milwaukee. The answer was if we thought they were bad enough we should come down and be admitted so that they could work on tweeking his TPN. We made the decision to just keep monitoring things and talk with his GI doctor in Milwaukee on Monday when he gets back in the office. So, we will see what he has to say. I am really hoping we don't have to head to Milwaukee any sooner than Thursday. He has been sleeping more than normal, but is starting to have a few more awake times. Maybe he is just trying to prepare himself for his surgery.
So, the plan is still to go to Milwaukee Thursday morning, and Surgery will take place at 9:30 on Friday. I am starting to feel a little better about the surgery and am starting to feel comfortable with the decision we made. Hunter has been having stooling issues still on the TPN, and then he starts to throwing up. I think he is just trying to remind me why we are doing the surgery.
So, we are just trying to hang tight and coast our way to Thursday.
Hayden and Harrison are doing well. They enjoyed Christmas. I think the hits were the tinker toys and the Geotrax trains.
Otherwise, same old same old at the Woldt house. I hope everyone had a great and safe holiday.
Thanks again for checking in. God Bless
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