Stud Muffin

Yep, you guessed it... I am talking about Boolicious! Just wanted to share... Hunter wore his speaking valve all day yesterday!!! What a guy, he had a lot to talk about that is for sure. Just when I am amazed, he amazes me even more. So, boo is doing fabulous. He has been spiking a temp here and there but we are pretty convinced its because he is teething. I know, go figure. We are just watching things. In the big picture, he is doing a fabulous job getting back in to his routine.

Hope all is well on your end of the world. God Bless

Figures

So, I think Mr. Hunter is playing with me. The phone rang Friday afternoon. Boo was a little crackly and wheezing. His nurse Angie took him to the Dr. and guess what.... double pneumonia. Well, hopefully we caught this soon enough that he turns the corner fast. I tell you, it feels like if it isn't one thing it is another these days. I just have to remember, in the big picture its not so bad.

Otherwise, hoping for an uneventful day tomorrow.

Please keep boo in your thoughts and prayers. God Bless

Awesome!

I just don't even know what else to say. Hunter is doing AWESOME!! We are officially back to our self, other than being a little more tired. Unless we are really tired, or I am guessing if we get a cold, O2 is no longer needed. Hunter's surgical J has healed very nice. Yesterday boo had such a fantastic day, he was in four point for 45 minutes , according to his nurse he didn't really like it but he did it. He was all smiles when you talked to him yesterday, it was just wonderful!!

Last night I sat back and thought about the last 4 months. Wow, what a roller coaster. I have always known how lucky I was to have my boys, all 4 of them. : ) But wow! Hunter has taught us so many things, love, patience, hope, faith... just to name a few. He reminds us that sometimes you just have to believe. I will never forget how strong all my boys were through the last few months. How strong my husband was for being a single parent for 8 1\2 weeks. How strong and understanding Hayden was for going with the flow of things, and for Mr. Harrison adjusting as well as he did to mom not being around. Well, and then my boo, my true miracle. You continue to prove to everyone that miracles do happen. You continue to bless so many people and warm so many hearts.

So we continue to remember how blessed we are. We continue to remember, that Miracles do happen : ) God Bless

Ahh.... Home...

Yep, we made it. Hunter came home last night and a happy little guy he was to be there. Now, we are hoping to continue on with a journey of uneventfulness.

Thank you again for all your thoughts and prayers. Boo is doing good, and you could tell he was a happy little man to be home.

We will update soon. God Bless

Yep, Still Here

Yep, we are still in Milwaukee.

Hunter was still having some pain issues, but it looks like we now have the cocktail of choice figured out. I irrigated him this morning to see what we could get, and I was able to get some stool. But, since his tummy was a little distended this morning the feeds have stopped. Sounds like they will probably do a KUB (Tummy Xray) this evening just to make sure there are no visible issues. So, please pray for poop.

They did a chest xray this morning, and there is one questionable spot.. so they are going to keep an eye on that. They also took cultures since his temp has been elevated. Nothing has came back yet, and I am thinking it is all due to agitation.

So, another xray in the morning to check on things and we keep praying for poop. Otherwise we are just passing time.

Please keep boo in your thoughts and prayers. God Bless

Happy Friday.... Not

Well our little visit is turning in to a little longer than we originally expected. They just did rounds and are saying early to mid next week before boo goes home. Arghh.... I am trying to not be bummed out but I am. It is just so depressing here. It is depressing to start thinking about the fact we have been here more than home this year. Arghh.. But, I guess this too will pass. We should have everything out of the way and be able to enjoy a nice summer going forward.

Please keep boo in your thoughts and prayers. God Bless

Button Boy

Do you like the new knick name? Well, you have to learn to make light of the situation sometimes. He's the cutest button boy I have ever seen : )

Well, we had a good day on this end of the world. Boo is doing good. Hunter is still having pain, but it is manageable. Hopefully tomorrow we will be able to start some slow feeds. Otherwise, we are just sticking together and trying to pass some time.

Hope all is well. Please continue to keep Hunter Bunter Boo in your thoughts and prayers.

God Bless