Today's Not The Day

So, today is not the day we will go home. Hunter had a tough night, but I was still optimistic we would be heading home today. I was able to get the Dr to agree reevaluating this afternoon if we could get him comfortable. That was until his blood work came back and his sodium level was high. Hopefully, we can get his sodium level down to a point they are not as concerned, and we can head home tomorrow.

Please continue to pray for Mr. Hunter. God Bless

Go Figure

Well, Hunter has the rotavirus. Just go figure. It is nice to know what was causing his issues. We are doing good. All the blood cultures continue to be negative. His lungs were a little wet today, but pending cultures remain negative, his xray looks good in the morning, and he continues to tolerate his feeds, we will be heading home tomorrow. Hooray!!

I talked with GI about potentially a surgical J tube vs the GJ that he has now. They are hopeful on trying to do G tube feds again, so he wants to give it another 4 weeks. Interesting, since we currently have no plans to start G feeds. We have only been doing J feeds and venting the G since we have been home. So, looks like we have some details to work out.

So, it is a happy Tuesday on this end. Please continue to keep Hunter (aka boolicious) in your thoughts and prayers.

God Bless

Don't Even Ask

That is how we are feeling this morning. Hunter was admitted to Milwaukee last night, or should we say early this morning, for abdominal pain. We are hoping this is just a viral issue, but better safe than sorry. They drew cultures last night due to an elevated temp, so now we wait. His electrolytes and potassium were out of whack, and we did some replacements on that and we are doing better. Hunter is finally resting peacefully for the first time in days, it is very nice to see. GI and Surgery will be stopping by hopefully this morning to share their thoughts. So, we wait. Have to love that : )

Please continue to keep Mr. Hunter in your thoughts and prayers. We will update you all when we know more. God Bless

Stinker

All is well on our end of the world. Hunter did decide to cause a little commotion on Saturday. Hunter's J tube was plugged. We really did not feel like going to Milwaukee to visit just yet. We were very lucky to be able to talk with Dr. Gordon, he was so helpful. Theda Clark here in the Valley would change the tube, but didn't have the right size. Dr. G talked with GI and they were OK with trying a little bit longer tube, but if that didn't work it would mean putting in a G tube for the time being and heading to Milwaukee on Monday. The Radiologist and the staff at Theda in IR were wonderful, oh so helpful. The new tube went in like a charm! Hunter, again you are simply a ROCK STAR!! So, after several hours of phone calls and a quick run to Neenah, Hunter was good to go.

Overall, Hunter has been doing very very well. We have started to do a few trials off the O2 to see how he does. So, hopefully in the next few weeks we can get off the O2 during the day and maybe just down to O2 at night. Hunter has not needed any Ativan for agitation, so that is wonderful! He continues to amaze us. He was a little agitated last night, not sure what that was about, hopefully nothing, we'll see how today goes.

Hayden and Harrison are both doing well. They have adjusted us being back together as a family. It has been so nice here they have enjoyed playing outside, but it sounds like it is going to be cold again this weekend. So, the weather is just a tease.

Thanks again for checking in on Mr. Hunter. We appreciate all the thoughts and prayers, he continues to be our miracle. God Bless

Home

That is the word that I just love saying! We are home!! We made it home on Saturday afternoon. Sorry it took me so long to update. We have been getting adjusted. You can tell Hunter's agitation has decreased now that we are home. Hunter is not quite ready to wear his hearing aids when his brothers are around, I think that is a little too much noise yet for him. Monday and Tuesday Hunter and I spent hanging out, it was very very nice.

Yesterday was my first day back to work, and it was great to have that sense of normalcy. It was so nice to see everyone! I am so lucky to work for such a great Company, and work with such loving and caring people. I am truly blessed.

To all our friends in Milwaukee, I promise I will get some updated pictures posted. Of course we are going to have to post some pictures of Hunter and some of his wonderful new friends. Watch out nurses : ) We miss you all in Milwaukee, make sure to tell everyone Hunter says hi and that he is doing wonderful.

We continue to take life day by day. We continue to pray for Hunters continued recovery. We are so blessed and so proud of our little man.

Thank you again for all the love and support.

It's Really Happening

We are coming home! Looks like tomorrow is the big day! We are so excited we can't stand it! It will be so nice to all be home again together.

We cannot begin to thank everyone for all their love and support over the past 2 months. Hunter is so blessed to have so many people that love him.

We look forward to getting home and settled, and celebrating his arrival home.

Thanks again! God Bless

The Big D

We have started to really talk about the big D for Hunter, discharge but don't tell him : ) We are aiming for the beginning of next week. Hunter is still on a little O2 which we anticipate he will be off of within the next day or two. He is at his goal for pediasure feds, now we just need to add the water and get him up to the 52 cc's maintenance an hour. His agitation is getting much better. He still startles easier than he use to but I think some of that will just get better with time. As for our bowels, so far so good I would say.

I can't believe that it has been two months and we are going to be going H (home), don't tell Hunter either. : ) I continue to be amazed by what a miracle I have been blessed with.

Thank you again for all your love, prayers and support. God Bless