Little Ham Bones

Happy Thursday!

Your probably thinking, Ham Bones?... I tend to call my boys my little ham bones because that is what they are : ) They each have their own little personality. It amazes me each day to watch how different they all are, yet how much the same they can be.

Harrison has grown up so much in the last month. He is really showing so much interest and love for Hunter that it brings tears to my eyes. He's at that difficult stage where he is too little to really understand, but old enough to realize that he's different. He's old enough to want to try and play with him, he is old enough to try to feed him french fries, and he is old enough to wave good-bye and give him kisses. Soon he will be old enough to really understand and explain to everyone else that he is different, and that is OK because we love him.

Hunter is old enough that he looks at Harrison with those eyes like can't you just leave me alone, old enough to know he can't even defend himself, and old enough to know how much his brothers and Mom and Dad love him.

Then there is my loving Hayden. He is old enough to tell his brothers that he loves them, old enough to help Hunter stop scratching his face or wipe his drool, and he is old enough to tell everyone everything they could possibly want to know as long as they keep listening : )

Even though by the end of the night we are tired, exhausted, and as hard as it is to believe sometimes crabby : ) It is things like this that remind me that these are my greatest gifts. To see the love and compassion through my three boys reminds me just how lucky I am to be there Mom.

Have a great day! God Bless

It's been so long....

Sorry it has been so long since my last post. As usual life has just been rocking.

We saw the GI doctor last week. We are going to try 1 tbls of Milk of Magnesia every morning along with our daily suppository and see if that helps get Hunter's bowels going on a daily basis. He is just so consistent at being inconsistent. For the most part, Hunter goes potty every other day, even with getting a suppository daily. Since he is already on a strong ducalax adult suppository there are not too many other options out there. We will give this a month and see how things go. He has not had anymore blood in his stool so hopefully we have turned the corner and will be done with that for a while. The plan is to try to get Hunter to go daily, and go and be done. So, we will continue to pray that we get this all figured out. If this doesn't work and we continue to have issues with Colitis we may have to talk with the surgeon to explore other options, but we aren't there yet.

Hayden is doing good. He is now officially going to be a Kindergartner. I cried at his preschool graduation... I will be a wreak next year I am sure. Soccer is almost done for the season, and T-ball started last night. Hayden informed me that he like T-ball much better than Soccer so looks like we will not be doing soccer next year. That is OK, I told him to find what he enjoys the most. Hayden continues to be my compassionate one... he read to Hunter the other night. He choose a cookbook of all things and then sang him a Lullaby before he went to bed. Things like that are priceless.

Then there is Harrison.... TROUBLE! We are going through that wonderful biting stage again. He drew blood on Hayden yesterday! I sure hope this phase passes fast. He is a little stinker all the way. He continues to amaze me by how many words he can say. He still loves dogs ... and cracks me up when he tries to put Haydens Ben 10 timer on his arm. He could really care less about his toys, it's all about Hayden's toys. They are finally starting to play together better, at least sometimes. Harrison is also starting to become much more aware of Hunter. He is, for the most part nice and gentle with Hunter... it is amazing how they just know at this age.

So, overall life is good in the Woldt house. I promise I will get some new pictures uploaded soon.

Have a fabulous week. God Bless

Hmm...

The true meaning of things that make you go hmm... Hunt man is still not himself. Saturday we were retching and throwing up again... and our bowels just do not seem right. Sounds like it is time for a call to GI. He is still crying so much more, I just wish we could figure out what the issue is. I feel so bad for him. You know it is bad when a trached little guy cries and you can hear the whimpering. We did an MRI last week just to make sure his shunt wasn't causing issues, and that checked out good. So, we are really thinking something GI related is going on.

Harrison is still being my little bully stink head. I really hope he gets past this... Hayden is even calling him a bully now.

Hayden is counting down the days until he is considered a Kindergartner. He is so excited. Last week he had a field trip to the new zoo in Green Bay, and I chaperoned. We had a great time.

Otherwise, things are good in the Woldt house. I will keep you posted on what the GI doc has to say.

God Bless

The Right Direction

Looks like we are heading in the right direction. So far so good with the rectal irrigation. We have not had anymore blood in our stool as of this time.

Hunter is going to have a quick scan MRI on Monday and a check with the Neurosurgeon. They want to make sure that his irritability is not shunt related. Even thought he is not showing signs of shunt failure, they want to count it out. It worked out well because Iskandar is going to be in Appleton on Monday so at least we don't have to take the long trip to Madison.

So, lets keep praying that things keep going in the right direction.

Hayden is doing well. I think he is ready for school to be done. He has started soccer, but is not sure if he likes it or not yet. I keep reminding dad that he is only 5. It is good exercise. We are going to start him in T-ball with his friend Raina. I think he will really like that! With all that, I think we are going to have to stop swimming lessons for the summer, otherwise we will be running Monday, Tuesday and Wednesday.

Harrison is doing good. He had a rough night last night, and I am not sure why. We are working on some anger management issues with him. I keep saying this too will pass. I think he is mad at me when I pick him up at daycare. It can only get better right?

Otherwise, the big 9 years of wedded bliss is sneaking up on us next week. Can you believe that!! How crazy is that. We were going to go to a Brewer game but the schedule just didn't work for us, so maybe next month. That probably will work out better since we are going to be doing some remodeling, and they are planning to start the end of this month or the beginning of next.

Have a fabulous day! God Bless

The Plan

Well, it looks like 14 days of rectal irrigation's, or what I like to call butt flushing, and 14 days of our wonderful antibiotic friend flagil. In the scope of things, I can handle this. The GI doctor thinks Hunter just has irritation, his Xray looks good overall, but he does believe we need to get him on a better daily schedule, not sure how we are going to do that yet. If only little man would have read the book : )

We talked with the GI doc about the increased whimpering and crying that Hunter has been doing. He is wondering if he is refluxing more, and maybe we should try feeding him more during the day, and less or not at all at night. I'm not convinced this is the problem yet, because the whimpering and crying doesn't necessarily relate with feeding times, or right after feeding times.

He did suggest that I contact the neurosurgeon just to run it past him. Hunter is not displaying any signs of shunt failure, but then again he didn't read the book : ) I haven't heard back from Benny on what his thoughts are so we'll see, I am guessing he may just order an MRI to check things out.

Well, overall I can't complain. "Butt flushing" might just become part of our normal life and that is just OK.

The other two little guys are good. Have a fabulous day. God Bless

Still Waiting.....

Well, we are still waiting for answers. Just have to love that! I called GI in Madison last night and he hasn't looked at Hunter's lab results or xray yet. I guess, it is on the list for this morning. So, I will have to followup again this morning. Needless to say, I am getting a little aggravated. Have to love the hurry up and wait : )

Otherwise, uneventful here. We will keep you posted. God Bless

Spoke too soon??

Well, yesterday Hunter had blood in his stool again. We called the doctor and had an Xray and blood work done. The Xray was inconclusive, imagine that, and his blood work was elevated. After, finally at 6:00 pm being today to either see the doctor in the morning, go to the local ER or drive to Madison, I decided to call the GI doctor on call in Madison. We talked about things and decided to start our rectal irrigation's and go back on the flagil antibiotic. We sent the lab results and Xray results to Madison and are waiting a call from the GI doctor. So, we still have no idea if we are heading to Madison or what.

Mom's feeling is there is something going on we just have not put our finger on yet. Please keep Mr. Hunter in your thoughts and prayers.

Otherwise, pretty uneventful. I will keep everyone posted.

God Bless