Quick trip.. Small Bump

That is sure what Boo is doing to his mom! Sunday morning the balloon in Hunter's J failed. Now, he has had his G pretty much since birth, and I can change that no problem. The J fell out, and I freaked out!!! Literally!! I guess it was just the anxiety of it all. Seriously, there is only one hole it can go in : ) After a took a breathe, giggled at myself, we had a successful tube replacement. Oh well, I guess I am even allowed to panic sometimes!

We ended up in the ER in Milwaukee on Sunday evening because of 400 cc's of dark coffee ground drainage from Hunter's Gtube. The Dr's were concerned he may have a GI bleed. They tested the drainage, and sure enough it was positive for blood, so boolicious earned himself at least an overnight in the hospital. They drew labs and his hemoglobin was fine, and everything else looked good except for his potassium was low, which didn't surpirse me since we hadn't did his refeed because of what it looked like. After doing and EKG to make sure the low potassium wasn't making his heart unhappy, they gave him a dose of Potassium and finally shipped us upstairs.

Our overnight was uneventful, I guess as uneventful as any night in a hospital could be. His hemoglobin stayed good, and his drainage cleared up. Imagine that... boo didn't read the book : ) So after talking with GI, we are just going to monitor things. Labs were redrawn and all was well, potassium was back to normal...this just confirmed that even though refeeding isn't the most fun thing to do, we do it for a reason. So, we were able to head home yesterday. A quick one night stay.

My Jonelle, one of Hunter's primarys from 4th floor was able to stop up for a quick visit. It was so nice to see her and watch boo get excited when she started to talk to him. We will visit again, but only for a trip to the zoo : )

Well, hopefully we have another little bump behind us. This weekend we are hoping to go to a deaf\blind weekend with the whole family. It will be fun, and I am sure there will be a lot of stories to tell.

Thanks again for all the thoughts and prayers. God Bless

I'm The Big Brother...

That is the look Hunter sends his brothers sometimes. If only I could ..........

It was pretty Kodak tonight. Hayden and Harrison were singing and mom was videotaping. I look over to only see Hunter trying so hard to tune them out.... he had this look like seriously.... what does a guy have to do to get some quietness in this place. Can you just be quiet, I am trying to concentrate. Hayden and Harrison finish their singing and Harrison proceeds to want to "help" or at least what he thinks as helping. Before I know it, Harrison is sitting there with the suction in one hand and wanting to eagerly suction Hunter. Only do I then see Hunter is detrached.... could be from his own doing or from the brother who "Thinks" he could be the big brother... If only Hunter could talk.... wouldn't you love to know what is going through his mind... it's like a Visa commercial...

Hunter trying to ignore his brother....reality.... Harrison detraching his brother.... priceless.

The guy can't even defend himself. Needless to say Hunter just looks at him like seriously..I can't believe that just happened and the whole time he is doing it with a smile.

New pics... family

Well, finally some new pictures...

Family

Then there is Boo..

And my loving Hayden

And last but not least Harrison, AKA Brutus

WOW

Name this handsome guy? Can you believe how AWESOME he looks!

Enjoying The Little Things

Well, that is what our life has been the last few months. Each day I get up, take a deep breath and thank God for all the miracles I have been blessed with this year. I was really in a slump about the year and everything my family has had to endure. But, I have decided to take a different look at things, and reflect on the miracles of the year. Each morning I remind myself how lucky I am, how blessed I am. Each day I give my boys hugs and kisses and remind them how much I love them.

This is truly a year of miracles... and just think the year is only half over!

Boo is doing fabulous and continues to amaze me with his smile each and every day.

God Bless

Rock Steady

Yep, that is what I say. Boo is doing simply fabulous. Other than a little face clawing, all is good. It is great to see how attentive he has been, and how happy and comfortable he is. It makes me think about how much his tummy was probably bothering him last year. This is the best, demeanor wise that I have seen him in a long time. We continue to pray each day for the blessing we have received over the last several months. If you would have asked me in January what life would have looked like now, I would never haven imagined it would be this perfect.

So, we are truly enjoying uneventfulness on our end. Hayden, interesting enough has been talking a lot about Hunter and asking a lot of questions. Some of the questions, I have to say are pretty tough to answer. It amazes me what he thinks about and how much he really "gets it." He is truly a loving and compassionate young man, or should I say almost 1st grader. That is crazy in itself.

Then there is Harrison, AKA Brutus. He is having fun trying mom and dad and giving us that naughty "Stink Eye." It is just amazing how much he has matured over the last few months.

This weekend mom and dad are heading away without the boys, the first time being away from Boo since everything has happened. I am a little nervous, but know he is in good hands with his wonderful Nurses. The other boys will be hanging out with family.

Hope this finds everyone well. God Bless

Stud Muffin

Yep, you guessed it... I am talking about Boolicious! Just wanted to share... Hunter wore his speaking valve all day yesterday!!! What a guy, he had a lot to talk about that is for sure. Just when I am amazed, he amazes me even more. So, boo is doing fabulous. He has been spiking a temp here and there but we are pretty convinced its because he is teething. I know, go figure. We are just watching things. In the big picture, he is doing a fabulous job getting back in to his routine.

Hope all is well on your end of the world. God Bless