Well, today was the big day for Mr. Hayden, botox day. All was well until it came right down to it. Dr. Edgar explained what he was going to be doing and why it was so important. When he came back in the room, shots in hand, Hayden freaked!! Talk about breaking mom's heart. Thank goodness Hunter and Angie came along for moral support. Dr. Edgars nurse had to hold his legs, Angie held is butt down and I talked to him and held his head. But, he did it. What a strong big guy he was. Two shots in each leg and it was over. Next week will be casting... and then the 6 week process begins, should be pretty interesting.
I am so proud of my little man. Keep saying your prayers this solves our tippie toe walking.
God Bless.
The Woldts
Tuesday, October 26, 2010
Sunday, October 17, 2010
We're Still Here
Yep, we are still here. Things have been good on this end of the world. Boo is doing fabulous... if I do say so myself. We have been monitoring his electrolytes but I think we finally have everything just where it needs to be. Such a great feeling.
Hayden is good. We are preparing for Botox on his legs on October 26th and then Dr. Edgar will be casting his legs on Nov 2nd... all this for tippie toe walking. Seriously, if it isn't one thing it is another. 6 weeks in walking casts is sure going to be a lot of fun, not!! Hopefully this does the trick... because otherwise it will be surgery right after Christmas. But, I still have to say in the big picture... it isn't a big deal. I keep saying it is better to get it figured out now.
Little Man Harrison is turning 3 on Tuesday... I can't believe that my baby is going to be THREE.. true meaning of time flys when your having fun... or something like that.
So, the Woldt's are just enjoying fall. It has been so beautiful the last month what could one possibly have to complain about. As each day passes we continue to thank God for all of our blessings. It sure has been a year of miracles.
Hope all is well on your end of the world. I promise to post sooner rather than later : ) God Bless. Thanks again for checking in.
Keep smiling : )
Hayden is good. We are preparing for Botox on his legs on October 26th and then Dr. Edgar will be casting his legs on Nov 2nd... all this for tippie toe walking. Seriously, if it isn't one thing it is another. 6 weeks in walking casts is sure going to be a lot of fun, not!! Hopefully this does the trick... because otherwise it will be surgery right after Christmas. But, I still have to say in the big picture... it isn't a big deal. I keep saying it is better to get it figured out now.
Little Man Harrison is turning 3 on Tuesday... I can't believe that my baby is going to be THREE.. true meaning of time flys when your having fun... or something like that.
So, the Woldt's are just enjoying fall. It has been so beautiful the last month what could one possibly have to complain about. As each day passes we continue to thank God for all of our blessings. It sure has been a year of miracles.
Hope all is well on your end of the world. I promise to post sooner rather than later : ) God Bless. Thanks again for checking in.
Keep smiling : )
Tuesday, August 24, 2010
Quick trip.. Small Bump
That is sure what Boo is doing to his mom! Sunday morning the balloon in Hunter's J failed. Now, he has had his G pretty much since birth, and I can change that no problem. The J fell out, and I freaked out!!! Literally!! I guess it was just the anxiety of it all. Seriously, there is only one hole it can go in : ) After a took a breathe, giggled at myself, we had a successful tube replacement. Oh well, I guess I am even allowed to panic sometimes!
We ended up in the ER in Milwaukee on Sunday evening because of 400 cc's of dark coffee ground drainage from Hunter's Gtube. The Dr's were concerned he may have a GI bleed. They tested the drainage, and sure enough it was positive for blood, so boolicious earned himself at least an overnight in the hospital. They drew labs and his hemoglobin was fine, and everything else looked good except for his potassium was low, which didn't surpirse me since we hadn't did his refeed because of what it looked like. After doing and EKG to make sure the low potassium wasn't making his heart unhappy, they gave him a dose of Potassium and finally shipped us upstairs.
Our overnight was uneventful, I guess as uneventful as any night in a hospital could be. His hemoglobin stayed good, and his drainage cleared up. Imagine that... boo didn't read the book : ) So after talking with GI, we are just going to monitor things. Labs were redrawn and all was well, potassium was back to normal...this just confirmed that even though refeeding isn't the most fun thing to do, we do it for a reason. So, we were able to head home yesterday. A quick one night stay.
My Jonelle, one of Hunter's primarys from 4th floor was able to stop up for a quick visit. It was so nice to see her and watch boo get excited when she started to talk to him. We will visit again, but only for a trip to the zoo : )
Well, hopefully we have another little bump behind us. This weekend we are hoping to go to a deaf\blind weekend with the whole family. It will be fun, and I am sure there will be a lot of stories to tell.
Thanks again for all the thoughts and prayers. God Bless
We ended up in the ER in Milwaukee on Sunday evening because of 400 cc's of dark coffee ground drainage from Hunter's Gtube. The Dr's were concerned he may have a GI bleed. They tested the drainage, and sure enough it was positive for blood, so boolicious earned himself at least an overnight in the hospital. They drew labs and his hemoglobin was fine, and everything else looked good except for his potassium was low, which didn't surpirse me since we hadn't did his refeed because of what it looked like. After doing and EKG to make sure the low potassium wasn't making his heart unhappy, they gave him a dose of Potassium and finally shipped us upstairs.
Our overnight was uneventful, I guess as uneventful as any night in a hospital could be. His hemoglobin stayed good, and his drainage cleared up. Imagine that... boo didn't read the book : ) So after talking with GI, we are just going to monitor things. Labs were redrawn and all was well, potassium was back to normal...this just confirmed that even though refeeding isn't the most fun thing to do, we do it for a reason. So, we were able to head home yesterday. A quick one night stay.
My Jonelle, one of Hunter's primarys from 4th floor was able to stop up for a quick visit. It was so nice to see her and watch boo get excited when she started to talk to him. We will visit again, but only for a trip to the zoo : )
Well, hopefully we have another little bump behind us. This weekend we are hoping to go to a deaf\blind weekend with the whole family. It will be fun, and I am sure there will be a lot of stories to tell.
Thanks again for all the thoughts and prayers. God Bless
Monday, August 9, 2010
I'm The Big Brother...
That is the look Hunter sends his brothers sometimes. If only I could ..........
It was pretty Kodak tonight. Hayden and Harrison were singing and mom was videotaping. I look over to only see Hunter trying so hard to tune them out.... he had this look like seriously.... what does a guy have to do to get some quietness in this place. Can you just be quiet, I am trying to concentrate. Hayden and Harrison finish their singing and Harrison proceeds to want to "help" or at least what he thinks as helping. Before I know it, Harrison is sitting there with the suction in one hand and wanting to eagerly suction Hunter. Only do I then see Hunter is detrached.... could be from his own doing or from the brother who "Thinks" he could be the big brother... If only Hunter could talk.... wouldn't you love to know what is going through his mind... it's like a Visa commercial...
Hunter trying to ignore his brother....reality.... Harrison detraching his brother.... priceless.
The guy can't even defend himself. Needless to say Hunter just looks at him like seriously..I can't believe that just happened and the whole time he is doing it with a smile.
It was pretty Kodak tonight. Hayden and Harrison were singing and mom was videotaping. I look over to only see Hunter trying so hard to tune them out.... he had this look like seriously.... what does a guy have to do to get some quietness in this place. Can you just be quiet, I am trying to concentrate. Hayden and Harrison finish their singing and Harrison proceeds to want to "help" or at least what he thinks as helping. Before I know it, Harrison is sitting there with the suction in one hand and wanting to eagerly suction Hunter. Only do I then see Hunter is detrached.... could be from his own doing or from the brother who "Thinks" he could be the big brother... If only Hunter could talk.... wouldn't you love to know what is going through his mind... it's like a Visa commercial...
Hunter trying to ignore his brother....reality.... Harrison detraching his brother.... priceless.
The guy can't even defend himself. Needless to say Hunter just looks at him like seriously..I can't believe that just happened and the whole time he is doing it with a smile.
Friday, July 30, 2010
New pics... family
Well, finally some new pictures...
Family
Then there is Boo..
And my loving Hayden
And last but not least Harrison, AKA Brutus
Monday, July 19, 2010
Enjoying The Little Things
Well, that is what our life has been the last few months. Each day I get up, take a deep breath and thank God for all the miracles I have been blessed with this year. I was really in a slump about the year and everything my family has had to endure. But, I have decided to take a different look at things, and reflect on the miracles of the year. Each morning I remind myself how lucky I am, how blessed I am. Each day I give my boys hugs and kisses and remind them how much I love them.
This is truly a year of miracles... and just think the year is only half over!
Boo is doing fabulous and continues to amaze me with his smile each and every day.
God Bless
This is truly a year of miracles... and just think the year is only half over!
Boo is doing fabulous and continues to amaze me with his smile each and every day.
God Bless
Subscribe to:
Posts (Atom)
