Doing Good

Hunter continues to do well. Late last week they trialed him off the Cpap and just on trach collar. Hunter did pretty good for a day, but started to struggle. Hunter was 300 fluid positive which made his lungs a little on the wet side, which they believe caused him to have to go back on Cpap. In the big picture this is really not a big deal.

Hunter continues to pee like a champ, but the catheters are still in place as his levels are not quite where they want them yet. Hunter is still a little more aggravated than normal, edgy, elevated temp, and tremors, all believed to be related to withdrawals.

Today will be the day I will be talking with GI to confirm the plans for the colonoscopy and motility studies on Friday. They converted his mickey button to a Jtube on Friday, and he is getting pedialyte through the J at a rate of 40 cc's per hour and doing well with that. This is such a huge accomplishment.

Hopefully we continue to move in the right direction so we can bust out of here. Everyone has been so wonderful here. The nurses and the Dr's are all amazing. We are truly blessed to have such a great facility so close to home.

Please continue to pray for healthy lungs, for the withdrawals to pass, and for us to figure out our GI issues so we can go home.

We continue to be amazed by Hunter's strength and perseverance. We are so blessed.

Thanks again for all the love and support. God Bless